Rare Disease Patient ‘Fighting for Survival’ as HSE Stalls Drug Access 23 Months
A woman with Friedreich’s ataxia sues the HSE over an unacceptably prolonged reimbursement decision for omaveloxolone, a treatment that could slow her decline and that is already standard care in 12 other European countries.
Source: roscommonherald.ie · laois-nationalist.ie